SoundBytes

Dementia Educator and community advocate Helen Murphy has dedicated her career to making the North Shore and surrounding communities more dementia-friendly. She provides training for North Shore organizations, speaks to community groups, and volunteers in developing new programs and opportunities for people with dementia to live better lives in a community that is "wise, inclusive and socially integrated."

The Building Capacity Project team in Thunder Bay, Ontario partners with the Northwest Dementia Working Group on a number of fantastic community initiatives. The team is very grateful to the NWDWG members who have volunteered to help run some of their Dementia Cafes over the years, for instance, as these cafes are a great opportunity for people in the community to witness for themselves how important representation is, how much capacity there is among people with lived experience, and to be a apart of breaking down stigma.

Lynn Jackson is an action group member with lived experience who played a key role in developing the Flipping Stigma Toolkit, a new online resource helping educate caregivers, people with lived experience, researchers, and the public at large about how to respond to stigma around dementia. Jackson talks about how important it is for care partners to empower people with dementia to stay engaged and active. Fostering autonomy while supporting someone with dementia works to maintain their sense of personhood. Treating them like they're sick makes them feel that way.

Dr. Elaine Wiersma of the Centre for Education and Research on Aging and Health at Lakehead University talks about the need to amplify a wider cross section of voices when it comes to the lived experience of people with dementia. If our exposure of these experiences stays too narrow, we run the risk of silencing important wisdoms, staying uninformed as to the broad range of experiences, and keeping devastating stigmas alive.

Art is a powerful vehicle for shifting perceptions and shaping culture. AND it's one way of letting your voice be heard when the words themselves might be too hard to say. Whether it's a poem, a collage, a painting, or a dance, the arts can be incredibly helpful and moving for people with dementia at all stages of their journey, and can help the public gain insight into their experience.